Legal, social, insurance | Recht, Soziales, Versicherung
Switzerland | Schweiz
Paid care leave | Betreuunugsenschädigung- Parents have the possibility of applying for paid care leave in order to take care of their children and be supported by the compensation office
Congenital condition | Geburtsgebrechen - If resident in Switzerland, when a child is born with a congenital condition like VGM the case has to be announced at the Office for Invalidity (IV Stelle) | IV Anmeldung für angeborene Krankheiten
Social Support Kinderspital Zürich | Sozialberatung Kispi - Advice for questions of social law, insurance and costs | Beratung in sozialrechtlichen Fragen (Betreuungsurlaub bzw. Entschädigung), Versicherung und Kosten
International
International support network for VGM - A support website with useful information, stories and contacts (based in the USA)
Facebook support group - A safe space where parents, relatives and friends can exchange experience and get support at any stage of the VGM journey
International Meeting on the Vein of Galen Malformation (May 2023)
